Friday, January 25, 2008

Good News..... but still uncertain.

Went to Primary Children's yesterday. They did both MRI's on spine and brain, all looked clean!!!! That is great news, except no one knows why Marcus is having pain. I really want to believe that it is just the Osgood-Shlatter (growing fast so the ligaments pull and cause pain) but I just feel deep down that something is wrong. I mean, obviously it is because Marcus is in a lot of pain and it seems to get worse. The Aleeve he has been taking really doesn't help much anymore and he just hurts all the time. I have had people tell me that I am just "looking for trouble" and that I am just jumping over every little thing. I am sorry, but I am a Mother and I am a complete believer in a "mothers intuition". Ever since Marcus's last MRI I have felt on edge and not understanding why I am just not feeling the peace I have been praying for. Well, part of it I found out today.

Our Oncologist that we saw yesterday is a new Dr. they hired back in September. She went over all his symptoms and then went down and looked at his MRI's. Came back saying they looked great. So she suggested going down and having his knees x-rayed on our way out. Today, she was nice enough to call John at work and tell him that she looked at his x-rays and off hand she can't see anything that would be causing the pain, but she is not a bone specialist. Then she goes on to say... "Oh by the way, did they tell you last november that his last MRI showed that his ___ (can't rembember what its called, but its the lining of the brain underneath the skull) has thickened quit a bit?" NO WAY!!!! No one ever told us that. She said that she didn't notice it until she went back and looked at his past scans and spent some time comparing them. It showed up in novembers scan and looks the same right now. If it gets any thicker they will have to do surgery. Of course they didnt give John any information on the signs or symptoms to look for if it does. Now, I know this has NOTHING to do with his knees hurting, but this really makes me wonder if anyone took the time (since Dr. Bruggers is gone) to really look at his scans and compare. This also makes me wonder if they are missing anything. I really am just sooooooo ANGRY about this, I can't even tell you. I am going to do everything I can to get on this and nag anyone and everyone to get his knees taken care of and also to look at his scans. I just can't believe that this is happening. I know someone from my Ped. Brain Tumor support group who has had bad experiences with them as well. It has taken them 6 months to finally tell her that her son needs a 3rd opinion on his pathology!!! I tell you, I am ready to pack up and go to another Dr.... SOMEWHERE... ANYWHERE because my trust in these Dr.'s is about out. Like I have heard a 1,000,000 times... no one loves my children as much as me and I am the only one who can speak for them and get them the treatment they need and deserve.

Ok, off my soap-box. Just had to "vent" a little, and it will probably not be the last time either.

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