Thursday, September 04, 2008

At the "BIG HOUSE" again!

Yesterday, Marcus recieved his 2nd dose of Irinotecan and Avastin. Things did not go well at all. He started with diarreah, then the vomitting came on, then the horrible stomach cramps. He was acting a little more confused than normal yesterday anyway, but it got worse after that. They had to send for the medications and that seemed like forever before they were able to get it all under control. =0( Poor boy, didn't know where he was or what was going on. He kept apollogizing for the mess he made in the bathroom.
He is feeling a lot better today, just sleeping a lot, which is good. They had told us that we could go home, if his sodium levels came up with the sodium added to his iv fluids, but they didn't. So here we are again, for another night. I guess it is good we stayed because if they don't get those levels up, he is at a higher risk for seizures. They will be giving him higher doses of sodium in his fluids and will be checking his levels every 6 hours. (Thank goodness for centrl lines, he can sleep through those kind of blood draws!)
It is so very hard to keep positive and watch him go through all of this. His face is getting more and more swollen everyday because they still can't tapper the steriods off, he gets pretty confused, onery, and spacey. I have to remember that it isn't him that his acting that way, its all the crappy medicines, chemo and of course the "beast" that has taken over his brain. I keep on pushing forward, keeping faith (cause I have no other choice) that the Lord knows what is best for him and all of us.

2 comments:

Nancy said...

Dang, I was hoping that you had been able to go home yesterday! I'm glad I called you the night I found out that Marcus had to stay at the hospital. I know how hard it is to be there alone with your sick kid. I'm so, so sorry that he is going through all this. My heart, thoughts and prayers are with you all.

(((Hugs)))
Nancy

Alice said...

I'm so sorry to hear what he has been going thru- I admire your stregth; give him a big hug for us - and one for you too- love ya!